Jul
16

Pain in the….

By jacquie  //  The Vlogs  //  No Comments

I have endometriosis as most of you know. I’m having 4 surgeries on Thursday to get myself as well as I possibly can. Many people don’t know much about this disease so I want to tell you a little about it. On most medical websites the symptoms include..

-Very painful menstrual cramps; pain may get worse over time
-Chronic severe pain in the lower back and pelvis
-Pain during or after sex
-Intestinal pain
-Painful bowel movements or painful urination during menstrual periods
-Spotting or bleeding between menstrual periods
-Infertility or not being able to get pregnant
-Fatigue
-Diarrhea, constipation, bloating, or nausea, especially during menstrual periods

It seems not so bad right? For some women that have it, they don’t find out until they can’t get pregnant and have to have a laparoscopic procedure (that’s their only symptom). And for others we have been in pain ever since we started our menstrual cycle. My first symptoms started at age 10. I would be doubled over in pain when on my cycle and I would stay home from school for 4 days every month because I couldn’t get out of bed. Luckily the pain was only once a month back then. When I was 16 I thought my appendix was rupturing, but my tests came back normal. Doctors told me there was no way I could be in that much pain. So I suffered for years without any answers. I was diagnosed with endometriosis when I was 22. I had to beg the doctor to do it. I said I know I have it. Trust your gut! (Or stomach).

The best way I can describe what is now my daily pelvic pain is like a blister…you know the kind you get on your feet. You know that horrible feeling when the blister is raw and rubs up against something? That’s what it feels like inside of me. Like multiple raw blisters, like constant appendicitis, a gnawing pain that doesn’t let up. Endo cannot be diagnosed without a laparoscopy. It does not show up on scans. So that’s why it takes 7-10 years to get diagnosed because the symptoms mimic other illnesses and lack of knowledge in the medical community. Many people with endo don’t look sick on the outside, that’s why it’s called an invisible illness.

Also many of my family members ask me, with the best intentions..Another surgery? You’re still sick? Yes.. unfortunately there is no cure for endometriosis. However there are treatment options available, but many of them are very extreme and put you into menopause (not fun). I just wanted to raise awareness because many young women are suffering without being heard. It’s horrible. We are taught that periods hurt, it’s normal,take a Midol and get over it. Missing events, being in bed and crippled by pain is NOT normal. My other advice is to seek an endometriosis specialist who does excision (cutting) surgery and not a general OBGYN who will just burn the disease because they are not properly trained to do so. I wish I new that sooner. I went to a few basic OBGYN’s to have surgeries. It’s like having your general doctor do heart surgery on you…yes they are a doctor, but not what you need.

Please see a doctor if you feel like you could possibly have endometriosis.

 

XO,

Tacky Jacquie

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