Jun
11

Pain, Pain Go Away

By jacquie  //  The Vlogs  //  5 Comments

img-endometriosis-learn-moreAs some of you know, I suffer from endometriosis. I’ve had two surgeries within 5 months, been to countless doctors, emergency rooms, and the pain clinic every few weeks to get a steroid shot injected into my stomach to numb the area. All that and you’d think I’d be in less pain, but truthfully I’m in pain all day, everyday.

I’m going to be seeing a specialist at the end of the month to see what else I can do to help ease the symptoms. I hate complaining, I rarely talk to my family/friends about what I go through because I don’t want them to think I’m lazy or over exaggerating. I am not able to work at the moment because of all of this. I want to feel normal again and I’ll do whatever it takes to achieve that.

 

This is why I haven’t been updating on the site as much, I’m working harder to change that.

Also if you think you may have endometriosis speak to your doctor about your concerns. At age 10, I started my period. From then on I can remember having to miss school a few days a month due to the pain/cramps.I became so accustomed to it, I thought it was normal to be crippled in bed with the heating pad…all at age 10. Only until I was around 18, was when I suspected I may have endo. I would go to the ER because I had sharp pains on my right side, so naturally everyone thought it was my appendix. Until they discovered I had a ruptured ovarian cyst. From then on I continued to get cysts once a month, they’d rupture, and I told my old OBGYN from PA (I live in Boston now) that I think I have endo. She completely dismissed me and said it was just cysts and to suck it up. I did my research and all of the symptoms were dead on. But I didn’t argue, I just tried to move on. It wasn’t until August 2012 that it became clear to me that something was very wrong. I was so sick I landed in the hospital, they didn’t know why I was in such pain. For months the pain didn’t subside. In Nov.2012 my OBGYN decided to do a laparoscopy to see if I had endometriosis and it was confirmed that I indeed had it and a lot of it. I was 22 years old. From 18-22 is already 4 years of not knowing what I had, not counting age 10 when I probably had it then. Let’s do the math…10 years old to 22 years… 12 years of not knowing.

The only way to diagnose endometriosis is to do a laparoscopic surgery, that is why it takes 7 years on average to diagnose it. Because so many things can cause pelvic pain, as well as women thinking severe “pain” (especially during the menstrual cycle) is normal, we tend to get overlooked and told to just “deal”.

Unfortunately most doctors can’t remove all of the endo because they could potentially damage your other organs that the endo is on, so after that they put me on continuous birth control to stop my periods because that’s when the endo grows every month. Long story short, a few months later I saw a new OBGYN, she said she could remove all of it and we had surgery…but she also couldn’t remove even most of it because it was all over my organs as well as the back of my uterus. I may need another surgery, I may not, it all depends what the specialist says. Until then I will cuddle with my heating pad (I have burns on my back from using it for long periods of time) and hope for the best and as always I will keep fighting.

 

And with all that being said, none of you have to “deal”. Why should you suffer? Be your own advocate and don’t stop until you get the answers you need.

XO,

Tacky Jacquie

Here are a few symptoms…

 

  • Pain, which can be:
    • Severe pelvic pain.
    • Severe menstrual cramps.
    • Frequent Urination
    • Abdominal bloating
    • Severe fatigue
    • Constipation and/or Diarrhea
    • Low backache 1 or 2 days before the start of the menstrual period (or earlier).
    • Pain during sexual intercourse.
    • Rectal pain.
    • Pain during bowel movements.
  • Infertility may be the only sign that you have endometriosis. Between 20% and 40% of women who are infertile have endometriosis.
  • Abnormal bleeding. This can include:
    • Blood in the urine or stool.
    • Some vaginal bleeding before the start of the menstrual period or in between periods.
    • Vaginal bleeding after sex.
  • Jacquie My heart s breaking for you. I wish I could take all your pain away! I am praying for you and Josh for health miracle for youm both. Love you sweetheart!<3

  • great blog! the information you provide is quiet helpful, why i was not able to find it earlier. anyways i’ve subscribed to your feeds, keep the good work up.

    • jacquie

      Thank you very much Air Max 87 :). I’m glad to hear the info is helpful to you.

  • I do agree with all the ideas you have presented in your post. Thanks for the post.

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